The first question you might be asking is what is Apert Syndrome?
Apert Syndrome is a genetic disorder which includes premature fusing of the cranial bones (beginning in the womb) which is called craniosynostosis. Since the sutures in the skull don’t normally fuse until much later, the head grows in a malformed shape to accommodate the growth of the brain. Because of the problems with restriction in the growth of the skull, there is often issues of cognitive development and some forms of intellectual disability. This is often determined as the child ages.
This also creates a sunken midface which includes bulging and wide-set eyes, a beaked nose, and an underdeveloped upper jaw which leads to dental issues. It is associated with eye issues as the optic nerve is often stretched as well as breathing issues because of the shape of the pathway for air.
Associated with this is the fusing of fingers and toes which is called syndactyly. The child may have extra digits or fewer digits than normal.
Children can have related medical issues with the heart, lungs, or other systems.
The process of correction begins at 6 months of age and moves through teenage years. Multiple surgeries on the cranial bones, mid face, fingers and toes, including therapy will be in the future for children’s with Apert Syndrome.
For more detailed information see here.
'Til We Are Made Whole 